Bad News: Sarah Ann

Thursday, May 13, 2010

I really apologize for the lack of sunshine and rainbows around here, but unfortunately the doom and gloom seem to be prevalent.

Some of you may remember my sharing Abbi's story and ultimately her death. I did not want to ever update that story, as it should have been complete, but it wasn't. Abbi's younger sister, Sarah, with whom my cousin was pregnant when Abbi first suggested problems, was admitted in December with similar symptoms of Abbi's undiagnosed disease. There was a brief period where a doctor diagnosed Sarah with GBS, a small victory, as Abbi failed diagnosis!

Last week however, after a full day in the OR, that diagnosis was shattered after an MRI showed the development of the same changes in brain stem as Abbi had suffered. There is no cure, there is no diagnosis, there has only been resignation.

Kristi and Rob have made the agonizing decision to forgo traching and venting as they did for Abbi. My mind can not comprehend the weight of that decision. They do not know how long they will have with Sarah, but I'm asking that you pray for Sarah Ann, her parent's Rob and Kristi and our family.

To follow their story, you can receive an update through their caring bridge. They kept it the same, as there were already so many invested in Abbi.


Alicea said...

Oh, Leah, I'm so sorry. I have been wondering about how they have been doing. I think my mom said she talked to your mom about them, too...can't remember. I can't imagine what they are going through. How very, very sad and just not fair. My thoughts and prayers will be with them.

claire @ a peachtree city life said...

so so sad. reading her journal entries makes me sick to my stomach and a big lump in my throat. it's impossible to imagine what that feels like for those parents. you have to be an amazing person and parent to be able to endure that every day with such a positive outlook as she does.

Anonymous said...

I don't even know what to say. Sometimes, having a child makes me understands God's love so much better. But then other times, when I see children ripped from their family's arms like this, it makes me question how merciful God really is. I'm so sorry. :(

Krystie said...

I'm without words. God always has a plan, but sometimes I question his methods of his plan. What good can come from loosing 2 babies? My heart aches for the family.

abby said...

This is absolutely heartbreaking. I can not imagine what those parents must be going through. I am praying for their strength and peace with their decision, and of course for Sarah.

Julie S. said...

This just breaks my heart. I am praying for them, for their time with Sarah, and for strength.

Ashley said...

Obviously there are no words for the heartache of this situation! However, I will say that we live in a fallen world, and Satan will do anything to make people question the power and presence of God. For reasons unknown to us, He allowed Abbi and now (most likely) this precious little Sarah to come home to Him sooner. They are (and will be) in His presence!

I certainly don't have all the answers, and I can guarantee that I would be questioning and petitioning God were I in this position. However, He has always been faithful in His promises:

"Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution, or famine, or nakedness, or danger, or sword? No, in all these things we are more than conquerors through him who loved us. For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord."
—Romans 8:35-39

"Blessed are they that mourn: for they shall be comforted."
--Matthew 5:4

"For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal."
--2 Corinthians 4:17-18

God has a plan for this sweet, sweet family, and I am praying that they will cling to Him during this time. Only He can give a "peace that passes all understanding."

Love to you, Leah!

Amy said...

that is incredibly awful, and im so sorry. its just not fair. :( ill be praying for them!

Melissa said...

I am so so sorry. My heart is just broken for them and yet all I can think to say is that in all things, I know that God never ceases to be good. I can't even fathom the emotions and grief they must be going through and I will be praying for God's infinite goodness and mercy to overflow to them. May His Spirit speak true peace and comfort to their hearts that is beyond understanding and that will sustain them.

Meagan said...

Leah, I'm so sorry to hear that. I don't even know how I would make it. I prayed for them this morning whne I first read your post. I will definitely keep them in my thoughts.

Dr. Erin and Mr. Heath said...

Oh, my heart hurts for them. I wish there were words to say. Sarah Ann and her family are in my prayers.

Mary Michal said...

This breaks my heart. I will definitely be praying for Sarah, Kristi, and Rob.

Jill said...

I don't even know what to say.

This is unbelievably heartbreaking.

I'm so very sorry and will pray for them.

Kimberly Michelle said...

My heart just broke and the tears are streaming down my face. My love and prayers seem useless in the Internet space but I can't help but offer them up. I only wish there was something else I could do.


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